Awareness

‘It is not hopeless’: Parkinson’s disease doesn’t stop Austin duo from making popular art

One day, Verna Earl Hamilton Grice discovered she could not walk up the driveway.

That was the first sign.

Later, she felt tremors on one side of her body.

Ten years ago, she was diagnosed with Parkinson’s disease.

That’s when she stopped painting.

“I got tired,” Verna, 88, says. “I didn’t do it for 10 years. It’s labor intensive. Susan kept on.”

That would be her daughter Susan Grice, 63, who shares Verna’s zeal for making art.

“She focused instead on trying to figure out the illness,” Susan says of her mother. “She went to support groups such as Power for Parkinson’s. They promote exercise.”

Verna: “I was just hanging on.”

Verna, a native of Lake Charles, La., nevertheless made significant progress. A return to painting has helped.

Susan: “Her doctor says she is in the top 1 percent of his patients.”

“I walk really well,” Verna says with a laugh. “If you walk well, they think you are OK. I have my ups and downs. My ups are longer than they were, because I am so busy painting these days. Just looking at the paint seems to help.”

In their airy home studio, Verna and Susan paint together on wood. They seal the paintings so they can be hung outdoors. Their subjects include images inspired by Old Masters, original ideas, nature and abstract arrangements.

As in the past, the mother-and-daughter team enjoys a steady demand for their output, which could be called garden art. They recently staged an exhibition that attracted more than 60 guests to their house and garden in Westover Hills.

“It makes me feel better, I noticed,” Verna says. “How did I start again? My dentist was going out of his way to be sweet to me — I hate going to the dentist — so I brought him one of my pictures. He loved the picture. He had to have two more. They hang in the dentist’s office for others to enjoy.”

“She came home and said, ‘Oh no. I’ve got to get painting. We’re back in business,’” Susan says. “Since then, we couldn’t stop.”

The Grice method

Susan and Verna make 24-by-24-inch paintings on 3/4-inch exterior plywood.

“It’s done directly on the wood,” Verna says. “We prime it and then seal it several times after painting.”

“It’s like making signs,” Susan says. “They last for years and years. We don’t tell the exact formula. It’s a secret. A carpenter friend makes the frames of cedar.”

Mother and daughter come to the project with similar artistic sensibilities.

Susan, former director of psychiatric nursing at Seton Shoal Creek, studied at the Glassell School of Art, the teaching institute of Houston’s Museum of Fine Arts.

As for Verna, she was artistic as a child in Louisiana. She painted a bit in high school. She followed that inclination to Mexico City, where she studied Spanish and art in 1948 and ’49.

“Diego Rivera and Frida Kahlo were very much around,” Verna says. “I remember seeing Diego’s mural at a hotel there.”

A child of the Depression, Verna did not expect much more from life than hard work.

Her father, Vernon Earl Hamilton, took whatever jobs he could land.

“I never knew what to say when they asked, ‘What does your Daddy do?’” Verna recalls. “There were so many things, since it was the Depression. I know he owned slot machines on the side. He put them in little bars around Lake Charles. He sold one to let me go to Mexico.”

Her mother, Ruth McLaughlin Grice, worked as a bookkeeper for an ice company.

“She went to work to get me braces,” Verna says. “Guess what? She was working till she retired. I never got my braces.”

Verna has one sister, Helen Ruth Garman, who at age 84 is a Ride Austin contract driver.

Even Verna’s Mexican adventure came with a practical work goal.

“I was hoping to get a job using my Spanish,” she says, “but couldn’t find one. So I worked for a construction company for a while, then went to Houston. That’s where I met my husband, a young lawyer named Harrison Marion Grice.”

The newlyweds settled down in southeastern Houston and raised three children: Susan, 63, Charles, 61, and Laurel, 54.

Verna did not stop working.

“I sold real estate for a while,” she says. “I was a bilingual secretary in Spain after my husband died and also a legal secretary. I worked for the National Treasury Employees Union and lived in Washington for eight years. I was marching with the union when the older President Bush tried to freeze employees’ salaries to pay down the national debt. I was arrested and handcuffed, stuffed into a paddy wagon and taken to jail. The one thing I remember is that the toilet in the jail is right out in the middle of the room. That’s punishment enough.”

The family moved to Austin’s Northwest Hills in Austin in 1975. She retired in 1996 as the assistant to her union’s president and purchased the Westover Hills home in 2001.

Why paint?

“I just got in the mood,” Verna says of her first adult painting 15 years ago. “I got bored with looking out at those bare fences around the patio. They needed some color. That’s when we started making groups of paintings.”

Susan started painting and selling art right after Verna started in 2004. They’ve sold more than 100 paintings, many of them at places that also sell architectural pieces or items for the garden.

Verna finds that Parkinson’s is only a partial barrier.

“With just about any disability, you can still paint,” Verna says. “If you find someone to help on some things, you can still enjoy the magic of painting.”

“You let me draw straight lines for you sometimes,” Susan interjects. “With her permission and very specific instructions, she will direct me to draw a line. It allows her to still paint, which is fantastic.”

Both Grices promote Power for Parkinson’s, the nonprofit support group that offers free exercise, dance and singing classes at locations in Austin, Round Rock, West Lake Hills and Lakeway.

“I started going when there were just a few things we could do there, and now there are hundreds of activities,” Verna says. “I swim laps. I play bocce ball. I boxed. I decided my body is not made for boxing. Age 88 is too old to dive into the mat.”

Verna does not paint to inspire others, but she’s gratified it might do so.

“I just want people to know that, at 88, you can still have some fun and enjoy life,” Verna says. “A lot of people with Parkinson’s think that this is the end. But you can slow it down. You realize how important your brain is. Don’t get me wrong. It’s a bear of a disease. But it is not hopeless. There are lots of things you can do. Do it, try it — and get creative with it.”

Click HERE to view the artwork. Article from Austin360.com.

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Linda Ronstadt on the sound of her life

This article from LA Times focuses on Linda Ronstadt, who was diagnosed with supranuclear palsy, a variant of Parkinson disease, in 2013.

READ THE ARTICLE HERE.

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The Story Changes, While the Message Endures

Parkinson disease was in the national spotlight recently with the passing of auto industry icon Lee Iacocca, as well as ESPN founder Bill Rasmussen’s recent announcement that he has been living with the disease.

Learn more about these two very different stories, and how Parkinson’s affected each of them.

Auto industry icon Lee Iacocca dies at 94. He helped launch the Ford Mustang and saved Chrysler from bankruptcy.

The Story Changes, While the Message Endures: “I Have Parkinson’s Disease,” ESPN Founder Bill Rasmussen

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Turn, stop, then sit: A research-based guide for Parkinson’s patients

Tel Aviv University team studies why patients with Parkinson’s disease have difficulty transitioning from walking to sitting, leading to greater instability and falls

 

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Parkinson’s Awareness Posterboards

In addition to TV, RADIOPODCASTS, we also had BILLBOARDS around southeastern Wisconsin, and POSTERBOARDS at 34 gyms, clinics and YMCAs across the state!

We also received official proclamations declaring April as Parkinson Awareness Month from Governor Evers, and the mayors of Milwaukee, Madison, La Cross, Wausau and Appleton.

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WPA on The Morning Blend!

Jeremy Otte, director of outreach & education, and Dale Luedtke, a musician with Parkinson disease, were featured on The Morning Blend, a morning talk show on TMJ4 Milwaukee. Check it out!

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WPA Podcast

We recently launched a Podcast/Online Radio Show!

We will create a new episode every other week, and we’ll interview doctors, people with Parkinson’s, caregivers, therapists and more!

Listen to past issues here.

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WPA in the Community

Assisted living communities are prepared to care for older adults, but they aren’t always familiar with Parkinson disease. When a new resident has Parkinson’s, they turn to WPA for help. Jeremy Otte, WPA’s director of outreach & education, is happy to connect with these facilities and spend time training their staff to recognize some of the unique challenges presented by Parkinson’s.

“We are a RCAC assisted living facility,” said Bonnie Cohn, RN, campus administrator for ProHealth Care Regency Senior Communities. “We see many residents that move in with very minimal effects of Parkinson’s and see how quickly their disease can progress.”

Regency Senior Communities recently invited Jeremy to help educate their staff. He visited their campuses in New Berlin, Muskego, and Brookfield, and gave five presentations for employees on different shifts.

“It was wonderful for him to be here to explain the different stages and what to watch for. It helped them to understand the reasons that a resident may have ‘freezing’ episodes, difficulty getting their thoughts across, or slow mobility,” Bonnie told us.

Jeremy also discussed the importance of administering medication at a certain time, helping staff to understand the impact medication can have on a resident’s quality of life. She was grateful that he helped the staff understand how to assist a resident who is have these issues.

If you are interested in having Jeremy speak at your community or agency, call our office at 414-312-6990.

 

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Top Senior Scams to be on the Lookout For

Eras Senior Network of Waukesha County coordinates S.T.O.P. – an awareness program focusing on frauds and scams aimed at older adults.

In 2014, the Federal Trade Commission created the Pass it ON campaign aimed at encouraging people to share vital information about scams. The FTC encourages you to not only share gifts and food during the holidays, but also tips about scams targeting older adults.

Since 2016, Eras Senior Network has given 47 presentations to over 1,250 seniors and their caregivers about common scams targeting the senior population. Through our research and conversations with seniors who have experienced interactions with scam artists, we’ve collected a list of popular senior scams that we hope you’ll share with those you love.

Grandparent Scam: A scam artist calls a senior and says “Hi Grandma, it’s me!” Oftentimes the senior assumes they’re speaking to their grandchild and won’t even ask for a name. Sometimes, the scam artist pretends to be crying, which distorts their voice, making it easier for the senior to believe it could be their grandchild. The scammer will then tell the senior they are in some sort of trouble and will need money wired to them – and begs their “grandparent” not to tell their “parents”. To avoid this scam, ask the caller specific questions like their name, address, or something only your true grandchild would know – and never wire money or send gift cards through the internet!

Telemarketing “Yes” Scam: Telemarketing scam artists use a simple response to steal from you. In this scam, a senior will receive a call and be asked if they can hear the caller. The natural response is to say “yes”. Unfortunately, scam artists can record this response and use it to fraudulently authorize charges via the telephone, according to the Federal Communications Commission. The best way to avoid this is by screening your calls and only answering numbers you recognize, or finding another way to answer their question without saying the word “yes.”

Medicare Card Scams: As you may know, new Medicare cards without the individual’s social security number began being mailed in April 2018. With this comes the risk for Medicare related scams as predicted by the Better Business Bureau. Scam artists may ask you for your social security number or a payment in order to receive your card. Your new Medicare card will be sent to you automatically at no charge – you DO NOT need to do anything or pay anything for your new Medicare card to be mailed to you.

Spear Phishing: Spear phishing is an email or electronic communications scam targeted towards a specific individual, organization or business. Emails that look like they are from a friend or family member can actually be attempts to steal data. Before clicking on the message, hover your mouse (without clicking) above the sender’s email address to see if it is from the person you know. Phone calls may showing caller identification from a known person can also be spear phishing attempts. Once you realize the caller isn’t your friend or family member, hang up without saying anything!

Sharing what you know about frauds and scams may be the best gift you can give someone. If you feel like you have been a victim of a fraud or scam, contact your local police department by calling their non-emergency number.

Kathy Gale is Executive Director, Eras Senior Network, Inc. and a member of the Wisconsin Attorney General’s Task Force on Elder Abuse. S.T.O.P. Senior Frauds and Scams is brought to you by Eras through a grant from the Wisconsin Consumer Antifraud Fund at the Greater Milwaukee Foundation and the United Way of Greater Milwaukee and Waukesha County. More information about Eras Senior Network, Inc. can be found at www.ErasWaukesha.org.

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2018 was a big year!

The whole Symposium was excellent from beginning to end, including the meals and the informational booths. It was the best program I have attended.

Thank YOU for all the wonderful educational and supportive events and resources you provide for us caregivers. It means to much to know you’re there for us too.

I so appreciate WPA offering a Parkinson’s Dance Class in our area. We really enjoy the opportunity to participate and reconnect with people we knew from our support group!

Through our surveys, conversations, and emails, you have shared some great feedback with our staff about WPA’s growth and expansion over the last year. We have increased the number of programs we hold throughout the year, and added new locations around the state where we offer these programs. The number of attendees who attend these programs has nearly doubled in just a year!

Additionally, WPA’s Annual Symposium in June had over 500 people register to attend! So many of you wanted to come, we moved to a new venue. And we’re looking for another – even bigger – venue for 2019! THANK YOU to our awesome sponsors and vendors who support that program, and who allowed it to be FREE for every attendee this year.

WPA’s office moved! Our new space in Brookfield is a warm, inviting space that allows for small meetings on site. We are close to I-94, which allows us to keep moving across the state to support YOU!

In order to realign WPA’s Mission Statement with our goals and program offerings, our Board of Directors revamped the statement: Providing hope, community, support, and resources for people with Parkinson’s and their loved ones. This new mission statement truly shows what WPA is able to provide for YOU. We are a broad and diverse organization, providing you with what you need as you navigate life with Parkinson’s – whether it’s your own Parkinson’s, or that of a loved one.

We hired Laurie Couillard, as director of group engagement. Laurie’s entire job is to work with our nearly 150 support groups and exercise groups around the state, connecting them with the resources they need. WPA is also helping new groups and exercise classes start up – watch for more classes and groups coming to your area!

THANK YOU for all the support and feedback you have provided to us over the last year. We are here to serve you, and we look forward to seeing you at a program or group meeting soon!

Gary Garland | Executive Director | [email protected]
Laurie Couillard | Group Engagement | [email protected]
Carolyn Hahn, Marketing Communications, [email protected]
Raven Hamilton | Administrative Services | [email protected]
Jeremy Otte | Outreach & Education | [email protected]

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