Facilitators

Facilitator Success Tip: Community Health Educators

Community Health Education Nurses are a fantastic resource for your group meetings, and are often very helpful in providing valuable information on a wide range of health topics, and may offer to speak to your group when available.

Community Health Education Nurses can be on staff at hospitals, churches and may also work with other community health organizations, such as community health clinics, or the Aging & Disability Resource Centers (ADRC) in your area to promote healthy living to provide workshops and education as part of their community outreach.

Check with your local health organizations to see if there is a Health Education Nurse in your area to help with education for your group’s needs and interests.

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Cognitive Activity: Mental Focus

Memory Recall Activity: One-Way Journey

Objective: To improve visuospatial orientation (the thought processes that involve visual and spatial awareness), and to improve memory recall skills.

Steps:
– Select two well-known places that you must travel mentally as if you are walking between them.
– For example, the origin may be your home address, with a movie theater as your destination. Which streets do you take? Which way do you turn? For a greater challenge, draw a map.

Activity from NeuronUp.

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Help collect geographical data on PD

We often get asked about actual numbers of people managing Parkinson disease around the state, and in what areas they live.

While a national database is in process to track this information, it will take a while until there is data available.

In the meantime, YOU CAN HELP! The best way for us to have a better idea of the number of people managing Parkinson’s across Wisconsin is to start tracking this information with data we know we do have – through gathering the numbers of attendees at your meetings. While not all those managing PD attend support or exercise groups, it is a start! We can work with what we have now: real numbers from meetings and classes going on today in our own communities.

You can use this attendance template (CLICK HERE) or send your average group attendance number to Laurie at [email protected].

If you do not regularly track attendance, please consider starting to help with this initiative!

Thank you for any help you can give in assisting us in this initiative! Moving Forward Together we can accomplish so much more!

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Care Partner Focus: Outdoor Activity

Fresh air and sunshine can help relieve stress from being cooped up together all winter, and break up the day-to-day the routine that can occur when we are stuck indoors for long periods due to weather or illness.

This spring, find some activities you and your loved one can do in your area that will bring joy or relaxation while you spend time together.

All too often, quality time spent together is lost in rushing to appointments, running to get errands done or just trying to adjust to changes in daily living as symptoms change.

Together, jump into summer with new plans for socializing, spending time together, with others or alone in outdoor activities like bird-watching, walks, biking, traveling or just enjoying a peaceful day at the lake watching boats pass by together!

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A note from Laurie | June 2019

Dear Facilitators,

Warmer weather is finally here and with it comes new opportunity! As I visit with many of you across the state, sharing information about WPA resources and events, I am learning more about the many ways you are finding opportunities to connect with exercise programs, local resources and other programs to help you live well in spite of Parkinson’s disease!

I want to personally invite you to join me in attending the WPA Facilitator Retreat on Thursday, July 25th at the Hilton in Milwaukee. This is a free event, with hotel and parking expense covered by WPA. This event is only for facilitators and a guest, and is conveniently scheduled for the afternoon before our annual WPA Symposium, held next door at the Wisconsin Center. CLICK HERE for more information and to register.

Exercise has been a topic we have focused on in many of our group discussions, and I have been able to view and participate in so many wonderful programs already available to our Parkinson’s community. It has truly been inspiring to hear how regular exercise has helped so many of you feel more energized, move easier, and even become more socially active! WPA understands the significant difference exercise can make in managing PD, and we have provided some areas across the state with financial assistance to develop exercise programs in areas where there are few or no programs available.

Now that we are hopeful that the weather will truly be warming up, find more opportunities for you and your groups to get outside for exercise and take in some good old Vitamin D to help the soul! Walking, hiking, biking, swimming and other outdoor activities can provide the exercise your body needs while opening up opportunities for social interaction and FUN! It hardly feels like exercise when you are doing an activity you enjoy in the company of those you love! So find every excuse to venture outside into the sunshine, and don’t be afraid to have an outdoor meeting if your planned support or exercise group meeting falls on a day with beautiful temperatures – It could spark all new conversation and insight just by being in a new environment as you share conversation!

Hope to see you soon – thank you for all you do!
-Laurie Couillard
Director of Group Engagement
[email protected]
414-386-2305

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Lessons from the Field: Positive Intentions

Positive Intentions

Go around the group and ask each member to share something thing that brings them happiness or joy that they can still do in spite of Parkinson’s.

This takes the focus off the frustration that comes with disease progression and the effect it has on limiting some activities, and focuses on the positive fact that there are many things a person with Parkinson disease can still do, even if it means modifying the task or activity in some way.

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Pharmaceutical Speaker Resources

Our staff often meets with representatives from various pharmaceutical companies.

These representatives are willing to come to your support groups to share information about the medications they offer. Please see the contact information below for several of these reps and contact them directly if you are interested in having any of them visit one of your support group meetings.

Please note that while we strive to bring you information from many sources, WPA does not recommend any specific pharmaceutical company or medication. Each patient’s physician knows their health history best, and will prescribe medications according to the treatment plan they feel is appropriate for their specific circumstances. We work to bring you resources for educational programming, so that you can stay informed of the choices available and discuss these with your physician. Please assure that when you contact a speaker from any pharmaceutical company, they understand you are interested in an educational program, and not a sales presentation.

Abbott Laboratories – DBS Surgery
Ben McLaughlin
[email protected]
773-456-6743

AbbVie US, LLC – DUOPA
Cathy Dorangrichia
[email protected]
414-350-7400

Acadia Pharmaceuticals, Inc. – NUPLAZID
Lisa Gagas
[email protected]
414-234-8564

Acorda Therapeutics, Inc. – INBRIJA
Brad Mouw
[email protected]
920-321-6416

Adamas Pharmaceuticals, Inc. – GOCOVRI
Tom Considine
[email protected]

Amneal Speciality, LLC – RYTARI
Chuck Perock
[email protected]
612-743-2966

Avanir Pharmaceuticals – NUEDEXTA
Kelly Santiago
[email protected]

Boston Scientific – DBS Surgery
Colleen Crane
[email protected]
612-805-2289

GE Healthcare Life Sciences – DaTScan
Chuck Augustine
[email protected]
262-227-1699

Lundbeck – NORTHERA
Jennifer Stuckert
[email protected]
262-993-7988

Medtronic – DBS Surgery
Nikhil Kulkarni
[email protected]
419-490-4302

UCB, Inc. – NEUPRO
Janet Jamison
[email protected]
312-671-7174

US WorldMeds, LLC – APOKYN
Jenelle Johnson
[email protected]
262-347-6350

Vertical Pharmaceutical, LLC – OSMOTICA
Paul Marti
[email protected]
414-241-9305

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WPA Podcast

We recently launched a Podcast/Online Radio Show!

We will create a new episode every other week, and we’ll interview doctors, people with Parkinson’s, caregivers, therapists and more!

Listen to past issues here.

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Facilitator Success Tip: Promotion

There are never too many ways to promote awareness of your support group or exercise group in your community! One of our goals is to reach everyone in a community with resources, so no person with Parkinson disease feels alone or isolated! Here are some suggestions for promoting your support or exercise group to create awareness and increase attendance in the process:

  • Flyer distribution. Did you know WPA can create flyers for you? Save time and let us help! Flyers can have a big impact on awareness, and can be placed in areas such as:
    • Senior centers
    • Churches (many churches have Parish Nurses who welcome an opportunity to share news about local support groups – and some of the nurses can even be a speaker option for you, as they are a wealth of knowledge and eager to help with health education in the community!)
    • Local connections when networking
    • Libraries
    • Physicians’ offices, in particular primary care, neurology and rehabilitation offices. (Ask the staff if you can place on tables or shelves in the waiting areas. Do not leave a stack, as staff is often too busy to distribute, and while well intentioned, may never get them out in the lobby.)
  • This website! If you do not already have your group listed on our site, contact me immediately and we will get you set up. Many new patients look to our site for information, so let’s make sure they can find you here.
  • Business cards for your group. Did you know that we can create business cards for you, listing your contact information, meeting date and location – free of change? Many facilitators are excited to be able to hand out cards at events or in the community to let others know about their groups. Even more importantly, many of our support and exercise group members have asked their facilitators to give them some cards to hand out when they meet another person with PD at a physician office or at an event. Please contact me if you are interested in having us print some cards for you.
  • Local Aging & Disability Resource Centers (ADRC). Nearly every county in Wisconsin has an ADRC, and they are always willing to list your support group in their literature and post flyers at their sites. They can also be a great partner for promotion and speaking events.

• Participate in local health fairs- many hospitals and local organizations hold health fairs throughout the year, and you can promote your support group at these community events.

• Local Farmer’s Market in warm weather- this is a great way to impact community members- attendance at these type of markets is high, and you can reach many who have PD or know someone with PD.

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Lessons from the Field: Meeting Resource

One activity that can help spark group conversation and increase participation in discussions is a round-robin activity.  Facilitators often tell us they struggle getting members to participate and interact. Feedback indicates that while sharing time can be crucial to the success of a group, not all are willing to participate. Here is one way to be inclusive:

  • Provide notecards for members to take home. Encourage them to write one issue, concern, or topic that they encounter during the month, and return with the question they would like to discuss at the next meeting. Since PD can make writing difficult, this could be typed on a computer as well.

For many, it may be easier to plan ahead for a discussion topic than to come up with a question on the spot or try to remember what it was they had wanted to discuss with others. Writing makes thinking clearer, for introverts and extroverts alike! An introvert may find it easier to express thoughts verbally after they’ve written them down. You can introduce topics anonymously, and go around the room and give each member a chance to share their experience with the topic in a more comfortable manner.

  • Download an interest survey HERE to go over with your group. You can distribute it to your group and send it in to Laurie for tallying. She will get the results back to you, listing your top 5-6 choices to help you plan for future meetings. This form can also be a great idea list for you as are planning for 2019 speakers.
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